ailments, maladies and anomalies

Do you suppose there is any living man so unreasonable that if he found himself
stricken with a dangerous ailment he would not anxiously desire to regain
the blessing of health?

Petrarch

Ailments–illness, typically minor.
Maladies– a disease or ailment.
Anomalies–a deviation from the expected or standard

If we live, we will live to experience all three…
be it an ailment, a malady or even an anomaly…
Perhaps we will experience all three.

Some of us will have more than others.
And if fortunate, some of us will have them less and very few.

Ailments are more or less just aggravating…
a sore shoulder, a bruised knee, a cut, a slight headache…
things that don’t bring us to our knees but rather just slow us down.

Maladies, however, usually show up at some point or other, unannounced and
tend to be a bit fierce.

They may sneak up on us in the middle of the night or while on vacation.

They most often cause a disruption to our life’s flow and rhythm…
They come in as a cold, the chickenpox, a sore throat, a broken bone, the flu, a stomach bug…
They are annoyances to health and our time but they are things that are usually
rectified with some attention, a few meds and rest.

At other times, maladies can become a full-blown crisis…

They can come on quickly and out of the blue…
be it something like the physical results from an accident, a case of acute appendicitis,
a heart attack or some ruptured or blocked this or that or the dreaded “C” word…

Perhaps it’s a spiked and dangerously high fever for no apparent reason.
A signal from within that something is terribly wrong.

We tend to worry most when these things happen to children.
Often times their systems just aren’t old enough, immune enough, or tough enough
to fight for themselves.

We tend to go into crisis mode when the malady is within a child.

Yet maladies, be they minute or major, more times than not, happen to all of us
and most need our immediate attention…
or either we may suffer from the consequences of the ‘or elses’ in life.

Some maladies are things we have to learn to live with as it seems that our bodies
and/ or our systems are just the lucky bodies and systems that have inherited something
via DNA or just because we’ve become the lucky recipient of whatever has come our way.

Various long term maladies come to mind such as diabetes, chronic pain issues,
glaucoma, arthritis, and even some cancers…

They are annoying, somewhat debilitating, but we learn to carry on.
That is when many of these issues move from being a malady to the
category of an anomaly.

I know about all of these issues…but no more so than that of anomalies.

I have written before about having to live with IBS…
Irritable Bowel Syndrome.
When I was young, they told my mom I had a nervous stomach.

Today it’s more of a case that I hate my guts because my guts hate me.
It’s a great relationship.

I’ve also written about living with a bum thyroid as I have Hashimoto’s disease–
It steals your eyebrows along with your energy and gives you weight,
whether you wanted the weight or not…
and just as suddenly, it takes that weight away but it will not give back eyebrows.
It is a living yo-yo.

I’ve also written about living with hemochromatosis—living with a body
and a liver that absorbs iron and seems to store it as if the Apocolypse is coming…
as in holding on to it till it builds up to a dangerous level and then
you become known as Ironman or Ironwoman—not so bad if you’re into Marvel comics.

All of which are maladies, but if the truth be told, they are seemingly more like odd
anomalies…deviations from the expected and venturing off into the surreal.

Yet be they maladies or anomalies, they are most often things one learns to live with—
because as we age, we seem to acquire more and more anomalies—
anomalies that we just learn to live with.
Aggravating but we know the only choice is to carry on.

Remember what Churchill said…”If you’re going through hell, keep going!!!”

Yet within the recent past year, my anomalies have spiked.
I was left feeling simply bad, all the time.
Achy, tired and just almost flu-like constantly.
But who had time for such?
If you looked at me, you knew no difference…but I did…hence the anomaly.

I am the type of person who likes to have definitive answers in my neat and
tidy little world.
I like to know why certain things are and if I don’t like those certain things,
I want to know what can I do, on my end, to fix them or at least alleviate them.
I’m a doer and a fixer.
I was simply prewired as such.

It seems that my general practitioner, internal med doctor, feels much the same.

Let’s get all the answers and then determine what we need to do.
What is our plan of attack?
I like that, it’s like a good general in battle.

So with a spike in anomalies, which has only lead to exacerbating the current maladies,
I’ve had a bunch of blood work.
I’ve had a few ultrasounds as well.
And the call for a few other tests that I just let pass as time has not been on my side.

My doctor was left with more questions rather than conclusions…

So what does a doctor do when they have more questions than answers???
They send you to another doctor.

I was referred to a rheumatologist.
I was pretty certain I had Lupus.
I just knew it!
I was sure of my answer because finally, I would have some vindication.
I could look a few former doctors, who thought that I was nuts, in the face
and let then know I was not nuts after all!

I’ve thought I’ve had Lupus for most of my adult life.
Too many quirks that couldn’t be readily answered and many of those quirks were
immune-deficient related.

It made perfect sense in my non-medical practicing brain.
Heck, I was adopted, I had no history markers.
I was pulling rabbits out of hats!

It took me two months to get into see this new doctor.
She was backed up that long.
Two months of waiting and feeling like crap but living on…

Then it took almost as long to get the labs and bloodwork back…
One round would come back sketchy so she’d call for more and more vials of blood—
I was beginning to wonder if I wasn’t visiting a vampire or the good old fashion
leech loving doctor.
Heck, why don’t we just chop a hole in my head and let the bad vapors pour on out!

So Wednesday, when we finally met again face to face, she was very apologetic about the length
for which we’ve had to wait…the bloodwork was sent to both California and Michigan.
Am I sure I want to trust what conclusions come out of California and Michigan?!

“Good news,” she tells me, “it is not lupus.”

“Hummmmm” I muse in my head.

“But it is Sjögren’s,” she announces—“another type of immune disease but
the better of the two out of Lupus.”

“Yes well, at least I could pronounce Lupus” I inwardly grumble.

“Sjögren’s can accompany Lupus or stand on its own—
for now; it seems yours is standing on its own.”

“It does much the same as Lupus…it affects your joints, your muscles,
it causes fatigue, causes Reynauds in your fingers and it can affect your organs—
but it primarily attacks your salivary glands and tear ducts as in it affects
the teeth, gums, swallowing, and the eyes.
Oh, and it can lead to Lymphoma so we will need to do regular labs”

I’m going to prescribe an immunosuppressant drug that has been around since WWII.
It was a drug used to treat Malaria in soldiers but then the disease grew resistant so they
discovered that it aided in joint pain…so…

Huh???
I thought she said this was the better of the two autoimmune diseases???!!!
And so now I am a mosquito repellant…sigh.

However, she added, your liver enzymes are just way too high and your
ferritin is way too high plus your kidney functions are way off…
so…..”

And so now it’s off to the Gastrointeroligist for a liver biopsy and to the
Urologists to check on perhaps kidney stones or something else.

I’m the type of person who is a one-stop-shop kind of person.
I don’t like a hodgepodge of the unknown nor a hodgepodge of doctors.
Yet hence the life of an anomaly.

So I’ll keep you posted on this life of an anomaly, malady, and ailment.
Sorting out the three and figuring out which is what.

But in the long run of all of this random mess, I know that God
is well aware of what is what, which is which and why it all is.
It is that knowledge that helps to lead a malady to a mere anomaly…
something perhaps aggravating, yet tolerable…
because all things are used for His glory…
sometimes we don’t see or understand that glory…
but never the less, that Glory remains…

Arise, shine, for your light has come, and the glory of the Lord has risen upon you.
Isaiah 60:1 ESV

And today’s irony…
the Verse of the Day:
Dear friend, I pray that you may enjoy good health and that all may go well with you,
even as your soul is getting along well.

3 John 1:2

Sleep Deprivation or brainwashing

“My schooling not only failed to teach me what it professed to be teaching,
but prevented me from being educated to an extent which infuriates me when I think of
all I might have learned at home by myself.”

George Bernard Shaw


(Oh to sleep like a new grandbaby / Julie Cook / 2018)

The older I’ve become the more I’ve found that the notion of a precious night’s sleep
is not only alluding me but has become a fleeting fancy.
Meaning, it just seems to be a dream rather than a reality.

And how poetic that the inability to sleep should be but a dream…

Being able to finally fall into a bed of something that is somewhat welcoming and inviting–
providing a bit of respite and a place to temporarily sever the maddening ties of the day…
is the hope and desire of most human beings.
For we were wired to rest and to sleep—a time period given us in order to repair
and replenish ourselves.

Yet as we age, falling asleep no longer comes readily.
Staying asleep seems impossible… so much so that waking is a near depressing event as in
it signals another passing night of weary failure.
They chalk it up to age, stress, hormones and life…
sigh…

Enter the new grandchild.

As all new parents and grandparents know,
tending to a new baby that has decided to be an owl,
meaning that said newborn prefers to sleep during the day while choosing to be wide-eyed
at night, is an exhausting affair for all involved but the new babe.

A sleep-deprived brain has been compared to the same as if a person is intoxicated.

Poor choices, poor coordination, poor processing…
A dangerous mix.

Many an enemy combatant has opted to use sleep deprivation as a means of “torture” on their
captured prisoners in order to break the will while hoping to glean a few loose lip secrets.

So today, in a bleary-eyed state, when I read the latest offering by the renegade Anglican
bishop Gavin Ashenden regarding cultural brainwashing, it reminded me of my own sleep-deprived state.

In such a weakened state of brain fog and fatigue, it’s really quite easy to yield or to succumb
or to simply give in to all sorts of notions…

Anything anyone says we readily agree to, adhere to or adopt as our own as we are simply too tired,
too weak, too lacking…to resist.

So it would behove us, the Faithful, to be vigilant and to hold fast to our faith as the
current cultural trend is to brainwash the masses into accepting and eventually believing
a wealth of lies and falsehoods…

The following is an excerpt of the Bishop’s latest take on the current leanings of brainwashing
a gullible society…brainwashing both Believer and non-believer into accepting that which runs
counter to the natural and Holy intentions of a Divine Creator…

“The death of Billy Graham reminded me of how terrified I had once been of
being brainwashed.

I remember deciding to go on a quest to discover if Christianity was true or not and walking
into an Anglican Cathedral to hear an evangelist talk about Jesus.
His day job was being a vicar in York.
He wanted to help people examine who Jesus actually claimed to be.

“What if they try to brainwash me” I found myself thinking?
Someone, at some time, had managed to plant that thought in my head and it had stuck.

What I didn’t know was that these mild Anglicans were the last people on earth to want to
do any brainwashing, but that other people and other ideologies would be along shortly
who would be much more likely to try.”

In Bristol this week, some parents fought back against the brainwashing of their children
in infant school. The national campaign to destabilise childrens’ understanding of their
own sexuality has now reached down deep into our childrens’ childhoods.
Drag queens have been recruited to do workshops on gender identity for our 5-10-year-olds.
‘Diversity’ is the propaganda cover mantra.
Confusion is what the parents fear.

Christianity- the antidote to cultural brainwashing.

‘So remember what you have received and heard;
and keep it, and repent Therefore if you do not wake up,
I will come like a thief, and you will not know at what hour I will come to you.
Revelation 3:3

where can I find a pet leech???

Do you want to do something beautiful for God?
There is a person who needs you.
This is your chance.

Mother Teresa

Isn’t this the greatest picture ever?

Such a happy, handsome and loving couple…

It’s a photograph of my parents in 1958 the year before I was born (hear the pride in my voice)

Oh, you think that couple looks a lot like Gary Grant and Sophia Loren?

Hummmm…

well…isn’t that quite the coincidence?!

If you’ve been with me for a while here in blogland, you’ve already heard me speak of my
beautiful mother Sophia…

but shhhhhh, she doesn’t know.

Those of you who know me or have read much of this little blog over the years,
know that I am actually adopted.

I’ve shared this little tale before but for those of you who haven’t heard this
part of the backstory, I’ll back up a tad…

Back in college, my college roommates, whom I loved and still love, all knew of
my adoption.
One evening when I was in the Library having to do some sort of research on whatever
it was I was researching, I happened upon a shelf of books all concerning adoption.
I started pulling book upon book off the shelf and read about a subject I’d never really
looked into, much less discussed.

I shared with my roommates these new findings and curiosities.
And they too were curious…as many friends have been ever since.

But they also had their fun…of which I did indeed find funny.

They knew how besotted this hopeful one-day art historian was with all things Italia.
I yearned for Italy.
I had taken art history course after course on the Italian Renaissance.
I was smitten by those whom I considered to be the world’s greatest artists.
I had never been to Italy, but there some unseen power constantly pulling
me closer and closer.

So as screwball and silly college kids can be, I came home one day to a picture
of Sophia Loren taped to our room’s door with a hand-scrawled note, “adopt a Wop ”
–a word not considered politically correct—
but once upon a time, before this dreaded PC world of ours,
each country, each ethnicity,
each nationality had its own euphemism for their fellow nations
and fellow nationalities…
and it was what it was and no one much protested.

Everyone had a nickname—the yanks being the US, Frogs were the French and on and on…
Most names came from those things that these nations did or ate that would set them apart
from a fellow nationality.
Italians were not exempt.
Wop is a butchered word which roughly meant ‘thug’…
It originated in the southern Italian region—an area known for its heavy Mafia influence…
and so it goes.

But I was happy and even flattered to be linked to someone like Sophia Loren
and I was happy imaging that I had possibly Italian lineage.

Yet this post is not about all of that so I don’t want to belabor the point.
But just know that I knew I was adopted and must obviously be some sort of lost Italian.

Never mind that I’m actually Scotch / Irish.

So claiming Sophia Loren as a mother, who had no clue that she actually had this
long lost child living in the Southern US, as she was from Southern Italy, seemed so grand.
Add to the fact that whenever anything has gone wrong with me, I’ve always blamed it
on being adopted.

So today is no different.

I had my stress test.

It went ok, sort of.

The nurse told me that if I went on for 10 more seconds,
I would have registered having the heart of a 27-year-old….but…
there was a small anomaly.

When I got up to speed and began huffing and puffing, as I was now running uphill
and just praying I wouldn’t come flying off the back end of this inverted rollercoaster,
my blood pressure did not rise with the level of exerted intensity.
In fact, it didn’t rise at all.
It was the same as the resting rate before the treadmill.

Sooo, the cardiologist has ordered a nuclear stress test—
So I will now glow.

Here in the South we like to say that we don’t sweat, we glisten…
so I can now glisten and glow all at the same time!

He’s also ordered a heart ultrasound for the more compelling reason as to why
I had the stress test.

I’ve often referred to my having a bad thyroid.
I have a condition referred to as Hashimoto’s Disease.
It’s a thyroid that fluctuates like a roller coaster.
For a body to function properly, a thyroid needs to be consistent.
If not consistent all sorts of things go awry.

So I take a thyroid medication, which I’ll take forever and it helps to keep
my levels, level. I’ve taken it for years. I blame the adoption.

I have to go every six months for blood work in order to see if the levels have changed.

I did this last week.

The nurse called the following day…she starts the conversation with “Julie…”
I sensed something different in her voice.
“your liver enzymes are slightly elevated…”
meaning I still have a fatty liver—a result of a lifelong love affair with butter…
I get that from my aunt Julia Child…
“your cholesterol is up”—no news there.
and your hemoglobin is up…but that shouldn’t be too concerning…
however, she
(she being the doctor) still has a few questions so she’s sending
for more testing.”

The nurse calls back, following the weekend, and proceeds with “the news.”

A normal iron level, on the high end, is 150
Seems mine was 5 times higher…almost 600

I laughed rather incredulously.
“What does that mean,” I ask.
She tells me that the body obviously needs iron but my system is acting like a giant sponge.
Working on overdrive.
The body does not excrete iron.
There is no eliminating all the excess, it just keeps going and going, soaking it up.

Excessive iron produces symptoms—
all the symptoms I’ve been having but symptoms that have been simply chalked up to age,
or thyroid disease, or in my little mind, adoption…

Because when all else fails, we always blame the adoption…that being the unknown.

Yet excessive iron poisons the body.

Effecting the big three organs– mostly the heart, liver, and pancreas.

It effects the joints.
It causes fatigue.
It causes depression.
It causes hair to thin and fall out
It causes the fingertips to turn blue

Check,
check,
check,
and check…

But…doesn’t the winter’s dark cold dreariness make us all fatigued and depressed?
I’ve lost two significant family members this past year, that’s cause for depression right?
The blue fingertips is a thyroid symptom, right?
My osteoarthritis is age right?
The hair loss is also the thyroid, right?

This latest life glitch is called Hemochromatosis Metabolic Disorder.

A hereditary genetic mutation…
Mutation,
as in a mutant,
as in an X-Man.

Now it’s all making perfect sense…
As in, there are secret powers that I don’t know about right?
And now I know my family lineage….


(my new family)

So now we see all the connecting of the dots…

I told you it was the adoption!

I asked how one treats this little problem…as in how do I get rid of all this iron???

The nurse flatly states Phlebotomy.

Huh!?

I nervously laugh again.

Oddly, she is not laughing.

Cause all I heard was ‘otomy’…like a lobotomy…as in a hole in my head…

But then reality hits and I was like, “how is that to work??…
what are we talking about??…
giving a little blood or what??”

She tells me it most likely would be a weekly visit to the hospital to have a liter or so pulled off…
as in weekly!!!
As in like a freaking pin cushion.

Never mind that I also now need to cut out iron, alcohol, fat, sugar, citrus, Vitamin C, chocolate,
cooking in cast iron, using my grill (iron grates)…on and on and on goes the list of horror.

Just shoot me now!!!!!

But tea and red wine are ok as the tannin they contain helps impede the absorption of iron
in the body…Go figure.
Cabernet, a headache, and blocked iron…brilliant!

The last time I gave blood was in 1978, I was a senior in high school.
Once the process was finished and they had me to sit up, I immediately fainted.
After about 30 minutes, they tried it again.
Again, I fainted.
Finally, when they thought all was good, I was dismissed back to class.
By now it was lunchtime.

I had just grabbed a salad and was heading to the table when the next thing I know
I’m on the cafeteria floor looking up at a bunch of faces staring down at me as lettuce
was now scattered all over me…

I’ve never given blood to that level since.
I can do vials, tubes etc… just not bags.
And here now, I’m being told I’ll be giving at least a bag a week…
Geez Louise!

So maybe that’s my secret X-man mutant power…
Goodbye Sophia Loren and hello Leechwoman

So yes, now I’m thinking that perhaps if I could just find a pet leech,
I could work out this siphoning business from home so I wouldn’t have to keep going
to the hospital…makes perfect sense.

To be continued…..