be not anxious

Do not be anxious about anything, but in every situation, by prayer and position,
with thanksgiving, present your requests before God.

Philippians 4:6


(male and female urinary tract medical chart)

This is the chart that was staring at me today from the back of the door inside
the procedure room where I sat waiting.

I felt it was a waste of my time, not to mention money,
to be sitting and waiting on this final of three procedures.
The race down this particular rabbit hole was not, is not, a part of my current issues…
or so was my non-medical opinion.

Ever since July, I have been slowly riding a bit of a medical merry-go-round.

Bloodwork results resulted in more bloodwork.
More bloodwork results resulted in more specialized doctors.
Waiting on specialized results resulted in waiting to be seen by more specialists.
All kinds of specialists.

It seems this Sjögren’s business leads to soft tissue disease,
eye troubles, mouth troubles, kidney troubles, joint troubles,
even upping lymphoma possibilities.

Over the years, I’ve had the eyes, mouth and joint issues that I just thought
were odd individuals annoyances and not linked together.

Turns out they were linked.

Now throw in the soft tissue disease…gees.

The bloodwork results were all somewhat unsettling.
Elevated levels here, diminished levels there.
Ups and downs all over the place.

Add to that a suspected pancreatitis attack this past weekend…of which
could be gallbladder related…or not…
And thus the mystery deepens.

Now the doctors seem to keep multiplying and the merry-go-round keeps spinning.

Occult blood means that blood is detected via the labs and not seen by the naked eye.
It raises flags and eyebrows by the medical world.

It seems they found occult blood—hence my sitting and staring at a urinary tract chart.

Before her death three years ago, when my aunt was diagnosed with kidney cancer,
she had had no symptoms, no clues… but she did have occult blood.

I will admit, that despite my feelings that my third visit to this particular specialist’s
office was just a waste of time and money, a slight worry did gnaw at the back of my mind.

Thankfully, my non-medical expertise was correct…
All was indeed well…
all but a small kidney stone that has been in the same kidney in the same
spot for the past 4 years.

It is, however, the looming MRI in two weeks, the doctor’s appt on Thursday, what tests
will be added, and the other doctor appointments following the MRI—
all of which will hopefully be more telling.

Casting a bit of light into the darkness so to speak.

It’s not that I’m worried.
I just want to know, finally, what is what.
And then, how to go about dealing with the what.

That’s what doers like to do—they want to know what is what and then what to
do with that what.

However, I am a bit aggravated riding this merry-go-round of the medical world.
It is slow and it is time-consuming.
Yet I suppose many of us will all ride the merry-go-round at some point sooner or later
in our lives.

I couldn’t help but marvel in the day’s verse that came my way…
“Do not be anxious about anything…”

Those words echoed in my mind as I sat on that exam table.

Amen..be not anxious.
Prayer and thanksgiving…

Fast forward to the day’s end.
The day’s news is unfolding as I type, while missiles now fly across the skies in Iraq.
Breaking alerts keep interrupting the evening’s quiet…

My thoughts race back to that verse—
I took it as a fine-tuned spoken word for me today as I sat staring at that medical chart,
waiting for an unknown scope.

So now I cling to those same spoken words as this Nation sits wondering and waiting.

Do not be anxious—petition, pray and give thanks.

Do not be anxious about anything, but in everything by prayer and supplication with
thanksgiving let your requests be made known to God.
And the peace of God, which surpasses all understanding,
will guard your hearts and your minds in Christ Jesus.

Philippians 4:6-7

ailments, maladies and anomalies

Do you suppose there is any living man so unreasonable that if he found himself
stricken with a dangerous ailment he would not anxiously desire to regain
the blessing of health?

Petrarch

Ailments–illness, typically minor.
Maladies– a disease or ailment.
Anomalies–a deviation from the expected or standard

If we live, we will live to experience all three…
be it an ailment, a malady or even an anomaly…
Perhaps we will experience all three.

Some of us will have more than others.
And if fortunate, some of us will have them less and very few.

Ailments are more or less just aggravating…
a sore shoulder, a bruised knee, a cut, a slight headache…
things that don’t bring us to our knees but rather just slow us down.

Maladies, however, usually show up at some point or other, unannounced and
tend to be a bit fierce.

They may sneak up on us in the middle of the night or while on vacation.

They most often cause a disruption to our life’s flow and rhythm…
They come in as a cold, the chickenpox, a sore throat, a broken bone, the flu, a stomach bug…
They are annoyances to health and our time but they are things that are usually
rectified with some attention, a few meds and rest.

At other times, maladies can become a full-blown crisis…

They can come on quickly and out of the blue…
be it something like the physical results from an accident, a case of acute appendicitis,
a heart attack or some ruptured or blocked this or that or the dreaded “C” word…

Perhaps it’s a spiked and dangerously high fever for no apparent reason.
A signal from within that something is terribly wrong.

We tend to worry most when these things happen to children.
Often times their systems just aren’t old enough, immune enough, or tough enough
to fight for themselves.

We tend to go into crisis mode when the malady is within a child.

Yet maladies, be they minute or major, more times than not, happen to all of us
and most need our immediate attention…
or either we may suffer from the consequences of the ‘or elses’ in life.

Some maladies are things we have to learn to live with as it seems that our bodies
and/ or our systems are just the lucky bodies and systems that have inherited something
via DNA or just because we’ve become the lucky recipient of whatever has come our way.

Various long term maladies come to mind such as diabetes, chronic pain issues,
glaucoma, arthritis, and even some cancers…

They are annoying, somewhat debilitating, but we learn to carry on.
That is when many of these issues move from being a malady to the
category of an anomaly.

I know about all of these issues…but no more so than that of anomalies.

I have written before about having to live with IBS…
Irritable Bowel Syndrome.
When I was young, they told my mom I had a nervous stomach.

Today it’s more of a case that I hate my guts because my guts hate me.
It’s a great relationship.

I’ve also written about living with a bum thyroid as I have Hashimoto’s disease–
It steals your eyebrows along with your energy and gives you weight,
whether you wanted the weight or not…
and just as suddenly, it takes that weight away but it will not give back eyebrows.
It is a living yo-yo.

I’ve also written about living with hemochromatosis—living with a body
and a liver that absorbs iron and seems to store it as if the Apocolypse is coming…
as in holding on to it till it builds up to a dangerous level and then
you become known as Ironman or Ironwoman—not so bad if you’re into Marvel comics.

All of which are maladies, but if the truth be told, they are seemingly more like odd
anomalies…deviations from the expected and venturing off into the surreal.

Yet be they maladies or anomalies, they are most often things one learns to live with—
because as we age, we seem to acquire more and more anomalies—
anomalies that we just learn to live with.
Aggravating but we know the only choice is to carry on.

Remember what Churchill said…”If you’re going through hell, keep going!!!”

Yet within the recent past year, my anomalies have spiked.
I was left feeling simply bad, all the time.
Achy, tired and just almost flu-like constantly.
But who had time for such?
If you looked at me, you knew no difference…but I did…hence the anomaly.

I am the type of person who likes to have definitive answers in my neat and
tidy little world.
I like to know why certain things are and if I don’t like those certain things,
I want to know what can I do, on my end, to fix them or at least alleviate them.
I’m a doer and a fixer.
I was simply prewired as such.

It seems that my general practitioner, internal med doctor, feels much the same.

Let’s get all the answers and then determine what we need to do.
What is our plan of attack?
I like that, it’s like a good general in battle.

So with a spike in anomalies, which has only lead to exacerbating the current maladies,
I’ve had a bunch of blood work.
I’ve had a few ultrasounds as well.
And the call for a few other tests that I just let pass as time has not been on my side.

My doctor was left with more questions rather than conclusions…

So what does a doctor do when they have more questions than answers???
They send you to another doctor.

I was referred to a rheumatologist.
I was pretty certain I had Lupus.
I just knew it!
I was sure of my answer because finally, I would have some vindication.
I could look a few former doctors, who thought that I was nuts, in the face
and let then know I was not nuts after all!

I’ve thought I’ve had Lupus for most of my adult life.
Too many quirks that couldn’t be readily answered and many of those quirks were
immune-deficient related.

It made perfect sense in my non-medical practicing brain.
Heck, I was adopted, I had no history markers.
I was pulling rabbits out of hats!

It took me two months to get into see this new doctor.
She was backed up that long.
Two months of waiting and feeling like crap but living on…

Then it took almost as long to get the labs and bloodwork back…
One round would come back sketchy so she’d call for more and more vials of blood—
I was beginning to wonder if I wasn’t visiting a vampire or the good old fashion
leech loving doctor.
Heck, why don’t we just chop a hole in my head and let the bad vapors pour on out!

So Wednesday, when we finally met again face to face, she was very apologetic about the length
for which we’ve had to wait…the bloodwork was sent to both California and Michigan.
Am I sure I want to trust what conclusions come out of California and Michigan?!

“Good news,” she tells me, “it is not lupus.”

“Hummmmm” I muse in my head.

“But it is Sjögren’s,” she announces—“another type of immune disease but
the better of the two out of Lupus.”

“Yes well, at least I could pronounce Lupus” I inwardly grumble.

“Sjögren’s can accompany Lupus or stand on its own—
for now; it seems yours is standing on its own.”

“It does much the same as Lupus…it affects your joints, your muscles,
it causes fatigue, causes Reynauds in your fingers and it can affect your organs—
but it primarily attacks your salivary glands and tear ducts as in it affects
the teeth, gums, swallowing, and the eyes.
Oh, and it can lead to Lymphoma so we will need to do regular labs”

I’m going to prescribe an immunosuppressant drug that has been around since WWII.
It was a drug used to treat Malaria in soldiers but then the disease grew resistant so they
discovered that it aided in joint pain…so…

Huh???
I thought she said this was the better of the two autoimmune diseases???!!!
And so now I am a mosquito repellant…sigh.

However, she added, your liver enzymes are just way too high and your
ferritin is way too high plus your kidney functions are way off…
so…..”

And so now it’s off to the Gastrointeroligist for a liver biopsy and to the
Urologists to check on perhaps kidney stones or something else.

I’m the type of person who is a one-stop-shop kind of person.
I don’t like a hodgepodge of the unknown nor a hodgepodge of doctors.
Yet hence the life of an anomaly.

So I’ll keep you posted on this life of an anomaly, malady, and ailment.
Sorting out the three and figuring out which is what.

But in the long run of all of this random mess, I know that God
is well aware of what is what, which is which and why it all is.
It is that knowledge that helps to lead a malady to a mere anomaly…
something perhaps aggravating, yet tolerable…
because all things are used for His glory…
sometimes we don’t see or understand that glory…
but never the less, that Glory remains…

Arise, shine, for your light has come, and the glory of the Lord has risen upon you.
Isaiah 60:1 ESV

And today’s irony…
the Verse of the Day:
Dear friend, I pray that you may enjoy good health and that all may go well with you,
even as your soul is getting along well.

3 John 1:2

where can I find a pet leech???

Do you want to do something beautiful for God?
There is a person who needs you.
This is your chance.

Mother Teresa

Isn’t this the greatest picture ever?

Such a happy, handsome and loving couple…

It’s a photograph of my parents in 1958 the year before I was born (hear the pride in my voice)

Oh, you think that couple looks a lot like Gary Grant and Sophia Loren?

Hummmm…

well…isn’t that quite the coincidence?!

If you’ve been with me for a while here in blogland, you’ve already heard me speak of my
beautiful mother Sophia…

but shhhhhh, she doesn’t know.

Those of you who know me or have read much of this little blog over the years,
know that I am actually adopted.

I’ve shared this little tale before but for those of you who haven’t heard this
part of the backstory, I’ll back up a tad…

Back in college, my college roommates, whom I loved and still love, all knew of
my adoption.
One evening when I was in the Library having to do some sort of research on whatever
it was I was researching, I happened upon a shelf of books all concerning adoption.
I started pulling book upon book off the shelf and read about a subject I’d never really
looked into, much less discussed.

I shared with my roommates these new findings and curiosities.
And they too were curious…as many friends have been ever since.

But they also had their fun…of which I did indeed find funny.

They knew how besotted this hopeful one-day art historian was with all things Italia.
I yearned for Italy.
I had taken art history course after course on the Italian Renaissance.
I was smitten by those whom I considered to be the world’s greatest artists.
I had never been to Italy, but there some unseen power constantly pulling
me closer and closer.

So as screwball and silly college kids can be, I came home one day to a picture
of Sophia Loren taped to our room’s door with a hand-scrawled note, “adopt a Wop ”
–a word not considered politically correct—
but once upon a time, before this dreaded PC world of ours,
each country, each ethnicity,
each nationality had its own euphemism for their fellow nations
and fellow nationalities…
and it was what it was and no one much protested.

Everyone had a nickname—the yanks being the US, Frogs were the French and on and on…
Most names came from those things that these nations did or ate that would set them apart
from a fellow nationality.
Italians were not exempt.
Wop is a butchered word which roughly meant ‘thug’…
It originated in the southern Italian region—an area known for its heavy Mafia influence…
and so it goes.

But I was happy and even flattered to be linked to someone like Sophia Loren
and I was happy imaging that I had possibly Italian lineage.

Yet this post is not about all of that so I don’t want to belabor the point.
But just know that I knew I was adopted and must obviously be some sort of lost Italian.

Never mind that I’m actually Scotch / Irish.

So claiming Sophia Loren as a mother, who had no clue that she actually had this
long lost child living in the Southern US, as she was from Southern Italy, seemed so grand.
Add to the fact that whenever anything has gone wrong with me, I’ve always blamed it
on being adopted.

So today is no different.

I had my stress test.

It went ok, sort of.

The nurse told me that if I went on for 10 more seconds,
I would have registered having the heart of a 27-year-old….but…
there was a small anomaly.

When I got up to speed and began huffing and puffing, as I was now running uphill
and just praying I wouldn’t come flying off the back end of this inverted rollercoaster,
my blood pressure did not rise with the level of exerted intensity.
In fact, it didn’t rise at all.
It was the same as the resting rate before the treadmill.

Sooo, the cardiologist has ordered a nuclear stress test—
So I will now glow.

Here in the South we like to say that we don’t sweat, we glisten…
so I can now glisten and glow all at the same time!

He’s also ordered a heart ultrasound for the more compelling reason as to why
I had the stress test.

I’ve often referred to my having a bad thyroid.
I have a condition referred to as Hashimoto’s Disease.
It’s a thyroid that fluctuates like a roller coaster.
For a body to function properly, a thyroid needs to be consistent.
If not consistent all sorts of things go awry.

So I take a thyroid medication, which I’ll take forever and it helps to keep
my levels, level. I’ve taken it for years. I blame the adoption.

I have to go every six months for blood work in order to see if the levels have changed.

I did this last week.

The nurse called the following day…she starts the conversation with “Julie…”
I sensed something different in her voice.
“your liver enzymes are slightly elevated…”
meaning I still have a fatty liver—a result of a lifelong love affair with butter…
I get that from my aunt Julia Child…
“your cholesterol is up”—no news there.
and your hemoglobin is up…but that shouldn’t be too concerning…
however, she
(she being the doctor) still has a few questions so she’s sending
for more testing.”

The nurse calls back, following the weekend, and proceeds with “the news.”

A normal iron level, on the high end, is 150
Seems mine was 5 times higher…almost 600

I laughed rather incredulously.
“What does that mean,” I ask.
She tells me that the body obviously needs iron but my system is acting like a giant sponge.
Working on overdrive.
The body does not excrete iron.
There is no eliminating all the excess, it just keeps going and going, soaking it up.

Excessive iron produces symptoms—
all the symptoms I’ve been having but symptoms that have been simply chalked up to age,
or thyroid disease, or in my little mind, adoption…

Because when all else fails, we always blame the adoption…that being the unknown.

Yet excessive iron poisons the body.

Effecting the big three organs– mostly the heart, liver, and pancreas.

It effects the joints.
It causes fatigue.
It causes depression.
It causes hair to thin and fall out
It causes the fingertips to turn blue

Check,
check,
check,
and check…

But…doesn’t the winter’s dark cold dreariness make us all fatigued and depressed?
I’ve lost two significant family members this past year, that’s cause for depression right?
The blue fingertips is a thyroid symptom, right?
My osteoarthritis is age right?
The hair loss is also the thyroid, right?

This latest life glitch is called Hemochromatosis Metabolic Disorder.

A hereditary genetic mutation…
Mutation,
as in a mutant,
as in an X-Man.

Now it’s all making perfect sense…
As in, there are secret powers that I don’t know about right?
And now I know my family lineage….


(my new family)

So now we see all the connecting of the dots…

I told you it was the adoption!

I asked how one treats this little problem…as in how do I get rid of all this iron???

The nurse flatly states Phlebotomy.

Huh!?

I nervously laugh again.

Oddly, she is not laughing.

Cause all I heard was ‘otomy’…like a lobotomy…as in a hole in my head…

But then reality hits and I was like, “how is that to work??…
what are we talking about??…
giving a little blood or what??”

She tells me it most likely would be a weekly visit to the hospital to have a liter or so pulled off…
as in weekly!!!
As in like a freaking pin cushion.

Never mind that I also now need to cut out iron, alcohol, fat, sugar, citrus, Vitamin C, chocolate,
cooking in cast iron, using my grill (iron grates)…on and on and on goes the list of horror.

Just shoot me now!!!!!

But tea and red wine are ok as the tannin they contain helps impede the absorption of iron
in the body…Go figure.
Cabernet, a headache, and blocked iron…brilliant!

The last time I gave blood was in 1978, I was a senior in high school.
Once the process was finished and they had me to sit up, I immediately fainted.
After about 30 minutes, they tried it again.
Again, I fainted.
Finally, when they thought all was good, I was dismissed back to class.
By now it was lunchtime.

I had just grabbed a salad and was heading to the table when the next thing I know
I’m on the cafeteria floor looking up at a bunch of faces staring down at me as lettuce
was now scattered all over me…

I’ve never given blood to that level since.
I can do vials, tubes etc… just not bags.
And here now, I’m being told I’ll be giving at least a bag a week…
Geez Louise!

So maybe that’s my secret X-man mutant power…
Goodbye Sophia Loren and hello Leechwoman

So yes, now I’m thinking that perhaps if I could just find a pet leech,
I could work out this siphoning business from home so I wouldn’t have to keep going
to the hospital…makes perfect sense.

To be continued…..