tenacity

“Courage is not having the strength to go on;
it is going on when you don’t have the strength.”

Theodore Roosevelt

gwtwset4
(Vivian Leigh as Scarlett O’Hara in Gone With the Wind, wearing her mother’s curtains)

Think Scarlet O’Hara, Julia Sugarbaker and Steel Magnolias all rolled into one.
Who else would think to turn their mother’s prized curtains into
a matter of getting what they need…but a Southerner.

That’s because we in the South understand the significance of
desperate times requiring drastic measures…

For we are a resourceful lot when we need be,
especially during the thick of battle..
We are kudzu and honey all rolled into one..
Barbed wire and sugar spun together…

Because that’s just what we are down here in the South,
tenacious as a bulldog when needed,
soft as a cotton ball when called for….

We are also sweet and charming.
We are cordial.
We are warm.
We are hospitable.
We are not dumb, deplorable or rednecks…contrary to what some would have you believe.
We are educated.
Well educated.
We have great schools, colleges and universities.
People like our weather, well, maybe not in August…
I don’t like our weather in August, or even now, but I digress…

People like our food..think fired this or that, as in chicken and okra.
People like our drinks…think bourbon.
We are mannerly…for if we are not, our grandmothers are obviously not watching.
We believe in morality, decorum and being polite.

But none of that should never lead you to believe that we are
pushovers,
ignorant,
easy,
or lazy.

We are a strong kind people.

And I keep finding that I have to continually remind myself of such…

I have seen more of my poor father than any daughter should ever see of her father
and it is enough to last me a life time.
Bless him.
He can’t help it.
And sadly I can’t avoid it.

We got the water balloon dad unclogged today.
Mr nonchalant doctor was his typical rude, arrogant and non southern self during our visit…
He didn’t want to initially believe, let alone admit,
that there was any scar tissue from August’s surgery…
Well guess what…
there was.

No wonder poor dad was becoming a human water balloon,
a toxic human water balloon.
But mr nonchalant doctor assumed it was the tumor growing; the one we had opted not,
against his suggestion, to spend 8 weeks radiating on a daily basis.

“Has he looked at dad in that wheelchair of his” I wonder…

Quickly and without fanfare or even words, Mr nonchalant doctor performs a little procedure
then quickly leaves the room with us eventually leaving
with now a new sort of water balloon,
a catheter.
And thankfully free-flowing once again!!
No spreading cancer as dad was fearing…
just a little scar tissue fouling up the works…

Dad was having to get up literally 18 times a day and 9 times throughout the night living
like a human water balloon…filling up, but not flowing out.

The doctor walked out with nary a word….
No words of kindness, no words of encouragement,
no words of care nor words of what we might need to do…

Kind of like a wham bam thank you mam sort of moment.

Leaving me with the young nurse to attach everything…
getting everything in, on, up and poor dad back into his chair.

Where I come from a gentleman assesses the situation and lends a hand where
he sees the need.
We call that being a man…patient, kind, gallant and thoughtful.

When we finally walked out, me walking, dad rolling…
Mr nonchalant doctor was sitting at his computer in his office, directly across from us,
as we exited the exam room.

I was sincere and gracious in my thanks and gratitude for helping dad.
As I was always taught to offer thanks for a service rendered and I was genuinely
grateful that dad would now be functioning and flowing.
Plus there I was wheeling my cancer ridden, feeble, 88 year old father
who has just bared everything to everyone…did he not deserve a word?

There was a very long pause of silence before acknowledging that I had spoken…
without glancing from the computer came an “ah huh”…
and with that, dad and I were on our way.

At the elevator dad leans his head back in my direction as I push the button for down…
“he doesn’t have much personality does he?”
“I think he’s a jerk dad.”
“I just think he doesn’t have a beside manner” dad counters…

And that my friends is the response of a gentleman.

A man who just bore his feeble sickly body for violation and he merely chalks up
being ignored to a lack of personality.
Where I see a sorry SOB…

Had I not been wheeling dad, who was now hurting and asked for something for pain,
as mr nonchalant non caring doctor quips over his shoulder, “take some tylenol'”…
I think I would have marched in that office of his, slaping my hands down on his desk,
asking or rather telling him to do the polite thing by
looking me in the face when I’m speaking
and to acknowledge my father as an elder as well as a hurting human being….

Because that’s what we do here in the South, we acknowledge our fellow human beings as
what they are, fellow human beings….

And don’t forget, we also came up with iced tea…..
thank you very much…

Love your enemies, do good to those who hate you,
bless those who curse you, pray for those who mistreat you.

Luke 6:27-28

It’s all relative

“No culture in history has ever embraced moral relativism and survived.
Our own culture, therefore, will either
(1) be the first, and disprove history’s clearest lesson,
or
(2) persist in its relativism and die,
or
(3) repent of its relativism and live.
There is no other option.”

Peter Kreeft

img_2314
(my stepmother is so proud of her pumpkin display…)

Relative or relative…
Hummmm…

They say that learning the english language is one of the hardest languages to learn…
and maybe that’s because of our penchant to use one word in multiple ways,
with each particular way having it’s own meaning and even distinct pronunciation…

Thankfully however we are not like the French what with all their le and la business…
I never could figure out why one thing had to masculine while something else had to be feminine…
why can’t it just be…neutral…as in just a word…..??

But I digress as I am too weary to rattle on about the English language,
or mes amis à travers l’étang,
or that of the Queen’s, the King’s,
or even the colonies now turned states, english….

And while I’m thinking about it, maybe we should have kept that whole colony notion,
having stayed with that crazy King George…
because that way we wouldn’t be living in the current land of sensory deprivation
with all things in life now being only Hillary or the Donald…

But then the fourth of July wouldn’t be nearly as festive and we’d be dealing
with Brexit…

sigh…

But I’m way too weary for all of that garbage today as well…

Today has just been one of those days…
you know the ones…
you wake up after an awful night of fitful sleep with ‘sleep’ being a relative term
as you only got one hour…
let alone the 7 or 8 or whatever is currently being required
for waking perky and refreshed.

I can’t remember when I last felt perky…
maybe its the inflamed nerves…

It was then a day for relatives…
as in Dad and my stepmother and the day’s current caregiver.

There are days I am strong…as I have to be strong for everybody right now…
especially Dad…
But then there are days like today when strength is a relative term…

My stepmother was in a good mood thankfully…but the caregiver was not…
And with my stepmother, each day is a mystery as to who will wake up…
Dr. Jekyll or Mr Hyde…

Upon my arrival, I was happy to see Dr. Jekyll,
who actually wanted me to go buy her a new trashcan…
the kind with the step-on latch to open the top…
And it had to be small and stainless…

After gathering the trashcan, which thankfully she loved…yet tomorrow that could change,
and gathering the groceries and their lunch…
it was time to schlepp things up from the basement all in order for her to
“decorate” for any trick or treaters that may come their way.

My dad is the sole remaining original resident of the cul-de-sac…
as all the other neighbors have sadly faded away.
The quaint neighborhood of 10 houses, that were built in the mid 1950’s, once overflowed with
the sounds of children…
Yet those children, of which I was once one, have all grown up and moved away…
leaving those once joyful sounds of play, sadly now silent.

I am happy however to report that young couples are currently moving back in
with their own band of gleeful little ones who will once again romp up and down
the relatively safe little street…claiming it, just as we had,
as their own tiny little realm of the mighty cul-de-sac.

So today, in giddy anticipation, my stepmother wanted to ready things for a few
hopeful customers for candy come Monday evening…

Yet as is often the case, dealing with those with dementia,
my stepmother was giddy and excited today,
wanting me to buy candy for Halloween….but come Monday,
which in Dad and my stepmom’s limited world, the passage of time is indeed relative,
she may completely forget, by tomorrow, what all the candy is for…

And then there was Dad…
still holding his own but gravely weak and now bleeding a great deal
as the doctors have told us the tumor would ebb and flow.
The tumor is now causing a good bit of pressure so dad feels the urgent urge
to urinate yet with little to nothing to show for the effort…
…and now there is more blood than anything else…
so the constant up and down is taking a toll.

He did however request, that when I went to buy their groceries, that I buy some ice-cream…
and I did…lots and lots of ice-cream.

By the time I was finally on my way home late afternoon,
the caregiver called me,
alarmed that dad is so weak that he almost fell getting in the bathroom…
She wanted to let me know that she was calling the hospice nurse,
who will be out tomorrow morning, sharing the latest worries.

So I will go see what she thinks…

Some days are good,
and some days are not so good…
and that, I suppose, is simply life…
Of which,
I believe,
is simply being relative…

So as I was driving home, with hot stinging tears welling up in my eyes…
wondering where my mom was when I needed her…
an old song I use to love a million years ago came flooding into
the forefront of my brain…
thankfully…
mercifully…
miraculously…
flooding…
and washing…
into my brain…

Reminding me…
swiftly,
quickly
and powerfully
that not all things in this life are merely relative…

That there is one thing and one thing only that is totally separate,
independent and irrespective of this innocuous life..

and that would be…
the Lamb of God…
the blessed lamb of God….

The song is The Lamb of God by Twila Paris
and this is a moving You Tube video clip I found reflecting her beautiful song…

circling the wagons

“Yup.
The end of a way of life.
Too bad.
It’s a good way.
Wagons forward!
Yo!”

John Wayne

A faithful friend is a strong defense;
And he that hath found him hath found a treasure.

Louisa May Alcott

18POzvZ

I’ve spent the better part of the past two years circling my wagons…
As I’ve been riding on a merry-go-round of all things focused on caring for a dad…
one who has been more child than father…
as it should be noted that that has been pretty much him for the majority of my adult life.

As a life long high school teacher, I can multitask with the best of them…
except when it comes to a crisis…
then my mind and actions narrow.

I become steely eyed…
as I grow laser focused,
blocking out most everything that sits on the periphery of life,
as I turn every available resource to the problem.

Trouble is, there have been a myriad of troubles during the course of
the last couple of years…
all of which have kept me and my sights narrowed and hyper-focused
for much longer than is most likely healthy….
hence my back, or whatever it is back there that has me unknowingly holding my hand
to my lower back as I go about my day in a gingerly fashion….
So unlike my ADDness of darting here and there all before blinking…

As an only child caring for two elderly individuals who have varying degrees of dementia,
as well as a wealth of physical ailments…
and who live miles away in a different city from my own…
it has all left me more and more isolated and emotionally spent

It seems my closest friend these days is the main caregiver who spends her days
making certain no one falls or forgets their medications…
let alone forgetting to eat…
which for one of them is a constant battle.

I live on the road, traversing back and forth.
The days I spend not traversing,
are spent on the phone with various doctors and healthcare facilities,
or paying a sea of endless bills,
or simply organizing a home and household other than my own…
A house that is nearly 65 years old and needs much in the way of care….

My phone rings constantly with the calls from an ever growing confused 88 year old man
who has decided he will die in the hospital come Friday during his surgery…
as his wife, my stepmother,
just can’t understand and is irritated as to why he keeps having to run to the loo.

The concept of a large tumor and bladder cancer has simply flown totally
over her head as she has decided she hates the new dishwasher.
I had to buy it,
have it installed
and now she hates it
for the one single reason…
that I bought it…
Go figure…

She now demands that the caregivers hand wash every dish and glass.
Just as she refuses to eat the groceries brought into the house
because she is convinced they have all gone bad and are rotten upon
arriving fresh from the store.

And if it’s not dad calling, it’s the caregivers calling with the latest craziness
as I work my magic to put out the fires of bodies and minds fighting themselves….

The journey getting here was slow and almost unnoticeable at first.
There were, however, signs and warnings…

Signs and warnings, that perhaps in my naiveté,
I thought would all turn out differently
or never materialize in the first place…

Just like the pictures I had in my mind of my future with my mother…

That when she would one day grow old and grey…as dad is now,
I warmly entertained the thoughts of how we’d have fun together…
We’d go to lunch and to the antique shops we each enjoyed when she and I were younger..
Just as we would then travel and see the world…together…

But those thoughts were smashed 30 years ago when she suddenly died from cancer….
So I don’t know why I try to imagine things as a certain way,
as that is not how they will be…

For the snowball has picked up momentum and is barreling at breakneck speed toward me…

And so, yes, I have circled my wagons…
drawing my camp ever near.
As my circle in life has tightened..
excluding many from what once was…

My eyes have narrowed
As I hold my cards tight to my chest,
lest they reveal too much…hopefulness…

Yet this story of woe is not as tragic as it might seem…
Nor is this heart bitter as it might sound…

For despite the fact that my world has shrunk from what it was…
from my friends
from my freedom
from my choices
from my comings and goings…

there has been much…
inward growing
inward learning
inward bending
inward moulding
inward shaping

For the winds of this life are shifting…
And attentions must be turning…

So I ready myself and my camp
for that which comes our way…

‘For I know the plans that I have for you,’
declares the LORD,
‘plans for welfare and not for calamity
to give you a future and a hope.’

Jeremiah 29:11

The Serenity Prayer
God grant me the serenity
To accept the things I cannot change;
Courage to change the things I can;
And wisdom to know the difference.
Living one day at a time;
Enjoying one moment at a time;
Accepting hardships as the pathway to peace;
Taking, as He did, this sinful world as it is,
not as I would have it;
Trusting that He will make all things right
If I surrender to His Will;
So that I may be reasonably happy in this life
And supremely happy with Him
Forever and ever in the next.

Amen.
A prayer attributed to Reinhold Neibuhr (1892-1971)

Sailors delight eh….

“He replied,
“When evening comes, you say,
‘It will be fair weather, for the sky is red,’ and in the morning,
‘Today it will be stormy, for the sky is red and overcast.’
You know how to interpret the appearance of the sky,
but you cannot interpret the signs of the times.”

Matthew 16:2-3

DSCN4194
(a view from the driveway on a sultry August Georgia evening / Julie Cook / 2016)

Red sky at night,
sailors delight….

Getting out of the car, at sunset, after a very, very long day
ferrying dad between this doctor and that doctor,
this lab facility and that medical center….
then spending almost 3 hours in traffic fighting to get home….
I look back, over my shoulder, toward the western sky.

The air is thick and heavy with the humidity of August.
Exactly how I’m feeling…weighted down and heavy ladened.

I sigh…

The evening is quiet.
A far cry from where I had just come.

Our son and daughter-n-law will be moving soon..
moving to the city I never seem to miss when I leave it.
But I can’t think about helping with packing and moving…
not yet…

I often think it not wise to write when life is so heavy
or…maybe that’s exactly when one should…write…
pouring out thoughts and feelings…
searching to match the right words with the right feelings…
sorting and making sense of the senseless…

A body that is tired and hurting
joining thoughts with feelings that now are swirling…
I look toward the red western sky…
as if seeking some sort of reassurance…

Surgery on Friday for dad…
the tumor too large to remove…
but trying to shore things up while buying some time…
Time…
another heavy thought…open-ended
full of uncertainty…

A red sky.

Signals a sailor’s delight…

In other words,
smooth sailing…

Hummm….

Again, a sigh…before heading inside…

Signs of the time…

As I am reminded, while looking at the sky…
in the midst of all the madness and heaviness,
That the Master of the sky…
and of the clouds,
and of the stars,
and of the land
and of the sea…
remains….

forever…

DSCN4193

For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope
Jeremiah 29:11

Red sky at night, sailors delight.
When we see a red sky at night, this means that the setting sun is sending its light through a high concentration of dust particles. This usually indicates high pressure and stable air coming in from the west. Basically good weather will follow.

Red sky in morning, sailor’s warning.
A red sunrise can mean that a high pressure system (good weather) has already passed, thus indicating that a storm system (low pressure) may be moving to the east. A morning sky that is a deep, fiery red can indicate that there is high water content in the atmosphere. So, rain could be on its way.

(courtesy the Library of Congress, Fun Science Facts)

pecans and prayers

“The function of prayer is not to influence God,
but rather to change the nature of the one who prays.”

― Søren Kierkegaard

RSCN4110
( our first crop of pecans / Julie Cook / 2016)

First of all let’s start off on a positive foot this morning…

Look at our first pecans on our little pecan tress.

You may remember the post I did about a year and a half ago regarding the whole buying, planting and caring for our little grove to be of 15 pecan trees…

People are all the time asking
“what are those cute little stick-like trees out in the field…?”

And I like to tell them that they are my little green topped Q-tips—
because that’s what they look like, an orchard of 15 little green topped Q-tips…

But how exciting it is that one tree out of 15 has decided to bless us with pecans…
However the jury is still out on whether or not they will actually mature into full fledged nuts…

Now on to the more serious…

I arrived at Dad’s early this morning, just on time to get him up and out the door to head off to the doctor’s for a scope procedure to figure out why he’s bleeding so much upon urination.

Dad had his prostate removed almost 30 years ago so that’s not the worry.
His late brother did have a kidney removed, due to a contained kidney cancer, when he was about Dad’s age and did fine with all of that—but he was always much more spry, active and more positive than dad.

So let me just say that I have been frustrated by the lack of speed in which these doctors seem to be operating.

Over a month ago I called Dad’s primary doctor telling him about the blood we’ve all been seeing and wondered might Dad not have another UTI?
He says he doesn’t have time for Dad to come in that particular day, how about in two days…

Ok, really???…you don’t have time for an 88 year old man who is losing blood from a rather odd place to come pee in a cup?

Ok
Whatever…

So when we finally jump through that little hoop, the labs come back negative for infection.
Henceforth we are referred to a specialist urologist—
A specialist who doesn’t have an opening for 3 weeks.

REALLY???

An 88 year old man is now bleeding every time he pees and is leaking blood on his clothes and sheets and you don’t have something sooner than 3 weeks???!!!

I know I’m surely not the only one thinking that Dad is
now more pale and much more frail and feeble.
I am not a rocket scientist but if I had an 88 year old patient losing blood,
I think I might consider that he could now be anemic and that maybe, just maybe,
he might need to get said 88 year old in the office asap…
(after today’s event, I will be calling the primary doc back tomorrow for some immediate labs)

So anywhooo, we wait.
Meanwhile Dad is calling daily to inform me that he is now not long for this world.

“DAD…will you stop that!!!”
“Let’s try and think positive shall we….”

So today when my son and I show up at Dad’s door,
in order to whisk him away for the 20 minute drive north for this procedure,
Dad is still sitting in his chair.

“Dad, come on, we’ve got to go….”
“Uh, I need to go shave”
A collective “WHAT??!!” is bellowed throughout the room by me, the caregiver, my stepmother and my son.
As in what have you been doing all morning but sitting in that chair waiting on me to come
get you and you still need to shave?!

“Well just go get my electric razor and I’ll shave in the car…”

Really?!

I tell my son the grab the walker, I grab dad, who grabs his razor and out the door we go.

Walking out the door I see that Dad is wearing a very dirty pair of khakis—
“Been sneaking more chocolate again Dad…?”
“Uh, do you want me to change pants?”

“Heaven’s no, we don’t have time–maybe no one will notice you’re wearing both last night’s supper, a bag of candy and this morning’s breakfast….”

Once in the car, I need to use my trusty little Mapquest app to find where we’re going as it’s north of Atlanta, somewhere way up 400.
However I can’t hear the lovely Mapquest woman talking for the loud buzzing of Dad’s razor.

“Dad do you need to use the mirror?”
“No”

Great, he’s now going to look like some Chinese Crested Chihuahua dog…

6a1c1edb-b647-4ecc-815a-519b744935a5
(not exactly dad, but very close)

We finally arrive at a massive array of office buildings, high up on a hill, perched off a very busy road.
A, B and C.
We need building C.
Upon seeing building C’s drive, I turn immediately.
Luckily no one is behind me to rear-end me.

I stop the car long enough for my son to get both walker and Dad out of the car, allowing them to head on up into the massive maze while I go to the massive maze of a parking deck.

By the time I rendezvous with my people, it’s time for Dad to head back for the procedure.
The nurse takes us back to a room where she tells Dad to drop his pants and hop up on the table.

Really???!

She then ushers me out into the hallway to wait in a chair as I explain to her that she might want to help him with that whole dropping of the pants and hopping up on the exam table…
you saw the walker right?

Barely 5 minutes pass and I see dad exiting the door, holding his unzipped, unbuttoned, unbelted pants as he shuffles at breakneck speed down the hall.
I jump up but some nurse voice from behind me tells me not to worry he just needs to go empty his bladder.

Oh, that’s reassuring.

Dad makes his way back down the hall in order to take a chair by me.
I notice that the entire backside of his pants is soaked.

Really???

I tell the nurse we seem to have had an accident.
She then asks if Dad would like a pair of scrubs.
“No” he wearily replies as he tells me the doctor found a tumor.

WHAT???

Finally the nurse comes to check his blood pressure and to give us his discharge papers.
Discharge papers????
He wasn’t back there 5 minutes!
She again asks about the scrubs.
He declines so she gives me a pad to put in the car.

Great.

The doctor, with hands stuffed in the pockets of his white coat, saunters down the hall
to where we sit and pulls the curtain—
So now we can’t see anyone around us but we can hear everyone loud and clear as they can hear us.
Funny how we fearfully fret over HIPAA laws, yet we leave nothing to privacy in hospitals and procedure facilities…
perfect sense…just like this country, but I digress.

Mr personalityless doctor tells me he wants dad back—they will call me in about 5 days to schedule a procedure to remove what they can of the tumor and send it off for a biopsy and hopefully it will curtail the bleeding.

I look at the doctor explaining to him that Dad has a tendency to gravitate to the negative and fixates on all things cancer, and that I’ve explained to Dad that not all tumors mean a person has cancer…right?!
The doctor offers a dry and unreassuring “yes”

Great.

After leaving the maze of a building, finding the car, getting Dad and walker back in the car, we prepare for our drive home.

“So Dad, what would you like for lunch?

“I can’t think about lunch right now, I have cancer.”

“DAD, no one said you have cancer.”

“I think you should call the church and put me on the prayer list.”

“Dad, you aren’t dying, you don’t need a prayer list…and anyway, you’ve not been to that church
in over 20 years, you don’t even know who the priest is up there…”
“We’ll call Martha and get her to put you on her list”
“Now what about lunch…”

Finally getting a very dejected Dad back home with his soaking wet pants, to the safety of his chair,
my stepmother greets us at the door…

“well, how’d you make out?”

“The doctor says Dad has a tumor in the bladder…”

“A container in his bladder??”
(she can’t hear and refuses to get hearing aids)

“NO, A TUMOR”
“oh” as she chuckles to herself…as I figure she has no clue as to what I’m talking about.

Asking again what everyone wants for lunch, the consensus is Chick-fil-A.

As I head out the door, dad hollers out “DON’T FORGET THE COOKIES”
Nothing like a little sweet to take the worry out of the day….

So let’s put dad on the prayer list here please—

I’ll keep you updated….

Meanwhile may we all be mindful that something as simple as a cookie or
something even nice and chocolatey, as Dad will testify,
can definitely help cure what ails you!

RSCN4111

RSCN4109